After many weeks of no news, I write today asking for prayer that this new door might open for me. In a roundabout way I learned of research being done at Mt. Sinai hospital in NYC. Early reports are VERY encouraging for folks like me who have had no curative prospect for myelofibrosis.
I have had email contact with the department (Dr. Hoffman) and sent medical records -now I await word from them inviting me to come in for a consultation.
Meanwhile, we are firming up plans for a trip east starting Nov 10 in Yakima, WA. We are heading to Sevierville, TN for the National Bible Bee in which Tirzah is competing. She’s nearly finished memorizing some 800 verses of Scripture and doing an in-depth study of 1 John and Ephesians for the competition. Lot’s of hours of review and pop quizzes from her folks over the next few weeks!
Some dear friends have made their van available to us for the trip and my body seems “up for the challenge.” We’ll include a mini-reunion with Rebecca’s relatives for Thanksgiving and maybe end up heading east to NY after that if Mt. Sinai is ready for me.
Here’s a link to the article that describes what’s happening at Mt. Sinai: http://blog.mountsinai.org/blog/physicians-identify-successful-drug-for-myelofibrosis/
Thanks for praying,
J. Dan Small